Sunday, March 21, 2010

Mind = Blown

So just when you think I am the bearer of doom and gloom the unthinkable happens.

I HAVE HOPE!

I went to my new doctor, expecting the usual accusations and trial and error medications.  Instead, I got reinforcement that none of this is related to a "somatization" disorder and it is no one's fault (despite the fact that I'm sure myself, my mother, and my father all carry some kind of guilt for it).  It was suggested that the issues are Bipolar Disorder and ADHD, but that the real problems are a reasonably rare, severe serotonergic disorder that has been causing constant pain since birth, and a super fast metabolism of drugs.  However, he wasn't terribly concerned with labels for disorders.  What mattered to him is that things are wrong, and they need to be fixed...simple as that.

Autoimmune issues and other previously diagnosed diseases are also present and he does not think that they will all be easy issues to up and remove.

The difference is - he is willing to try doses rarely used in conventional medicine, as well as support unconventional medicines in coordination with a pain clinic - like Marinol.  He also knows a doctor in Montreal who specializes in these types of things, so if he can't get it under control, there are connections that he can contact.

It's not a quick fix.  It's not necessarily a fix at all.  But I might be able to get in contact with someone who has seen someone like me before.  I might be rare, but I don't think I'm alone anymore.

xoxo,
Annie

12 comments:

Jonbayer said...

I was there but YAAAY. I got a distinct sense of hope off this guy which is more than the disbelief/annoyance I've gotten off all your previous doctors so I think we can get this figured out. :D.

Assiya said...

I'm so glad you finally have a better answer and some more hope Annie!!

Toni said...

This is most excellent news, Annie, especially since he knows a specialist in Montreal he can consult with. I also like that he was honest with you about the fact that it may take some time to see results (too many doctors offer the magic cure and then blame us when it doesn't work). It must give you so much hope to have a doctor who recognized what is going on with you and is willing to work with you. Hallelujah!

Sonja said...

So glad you have a doctor willing to work with you!! That's wonderful! Keep us updated!

Shelli said...

Hope is wonderful! At least you don't have to feel like you are battling alone. Fingers crossed for improvement soon.

Annie said...

Thank you everyone!!

Kathianne said...

Hope is so important. I'm glad you found some!

Rosebud Beads said...

It makes my heart so warm and happy to hear that you have real hope for a real fix! I hope he can bring you some relief. <3

Mo said...

It's about time someone listened to you!xoxomo

elisabeth said...

Hurray! I'm so glad that he seems open and willing to work with you! That's a wonderful start!

Robyn said...

YAY!! Finally, you have someone competent looking at your illness! I have great hope this will lead to all good things for you, Annie. Yay!!

Alison said...

Wow! That is exciting. Your doctor sounds like a good one.